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The holidays are a time of joy, but they can also bring added stress and responsibilities for caregivers. The Dan Nelson Respite Grant Program offers caregivers of people living with ALS the chance to step away from their care duties, promoting well-being and preventing burnout.

This grant provides short-term respite care and includes a visit from one of our ALS Support Services coordinators to ensure personalized support.

Established in 2012 by Sheila McCullough in memory of her husband Dan and his first caregiver, Thea, this program has grown thanks to the generosity of our donors.

If you’re ready for a well-deserved break, learn more about how to apply today.

Guide spotlight: Participation in Clinical Research

Clinical research is essential for understanding ALS and developing new treatments, and those living with ALS are key partners in this effort. The ALS and Participation in Clinical Research Guide provides the knowledge you need to explore opportunities to contribute.

The guide explains clinical trials, observational studies, and expanded access programs, offering insights into how they advance research and improve understanding of ALS. It also highlights the potential benefits of participating, such as gaining access to new treatments and helping shape the future of ALS care.

With clear guidance on what to expect, how to find a study, and steps to decide if participation is right for you, this guide empowers you to take an active role in research.

Click the link below to read the guide, also available in Spanish: